Dorsey Ross on Overcoming Life With Apert Syndrome

Life, in general, is not always an easy thing to live through or to handle. In John 16:33 Jesus said, “I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.” Sometimes we need this reminder more often than we think. 

My parents where not expecting to have another child. They already had two grown daughters (one was sixteen, the other was twenty one) when my mom went to the doctor and found out she was pregnant again. But the one thing that she and my dad were never told was that the son my mom was carrying would be born with Apert Syndrome, a congenital birth defect of the hands and face. When I was born, my forehead was pushed outward, my eyes and nose were pushed back into my head, and my fingers and toes were fused together so that I could not move them individually. Doctors told my parents that I had no skull opening and no room for my brain to grow and, therefore, I would eventually become brain dead.

The best plan, the doctors said, was to put me into an institution. On hearing this, my dad took a walk to pray and ask God what he should do. As he prayed, he heard the Holy Spirit say to him “be still.” Psalm 46:10 says “Be still, and know that I am God.” Sometimes in life, the plans that we have won’t always turn out the way we expect. We wonder at times where God is when the trials and tribulations come, and where He is when it hurts.

I have been in that place, and have asked why many times in my life. Why—if God is a loving and caring God—would he make me the way that he did? The greatest theological answer that I can come up with is simply this: I don’t know why. I do know, however, that regardless of what I have been through, God has a plan and a purpose for my life. Because of the way that I looked, I got bullied, picked on, and called names like monster and freak. But I realize that we live in a fallen world, and that when I was in my mother’s womb, God was creating and forming me. In the times when we don’t understand, He is asking us to be still and to trust Him.

At the age of thirteen, I gave my life to Christ, and accepted Him as my Lord and Savior.  There were times when I felt like giving up. There were times when the enemy would tell me that I wasn’t going to make it, and that I should just end my life. Thankfully I didn’t listen to the enemy that we call Satan, and you don’t need to listen to him either. You need to know today that God has great plans and purposes for your life.

One of the other side effects of Apert Syndrome is a speech impediment, and I had to attend speech classes as a teenager. For the most part I hated it. At the time, I felt like it was a waste of time, and felt like my speech impediment was just a part of who I was. Looking back, although my speech isn’t perfect, that process did help to make my speech clearer and more understandable, and in the end I’m glad I went to those speech classes.

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SOURCE: Christian Post, Dorsey Ross